Pediatric Internet Resource Center: Advocacy

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Last Update: December 06, 2014

General Reports

Internet Documents

FULL-TEXT REPORT
State of the World’s Mothers 2003 – Protecting Children and Mothers in War and Conflict
Save the Children USA
October 07, 2003
Report

     Journal Papers, Abstracts, and Commentaries

Using Community-Based Participatory Research to Advocate for Homeless Children.
Fetherman DL, Burke SC.
Soc Work Public Health. 2014 Oct 15:1-8.
Abstract
A WEEK-IN-REVIEW FEATURED REPORT
Advocacy Opportunities for Pediatricians Caring for Maltreated Children.
Crawford-Jakubiak JE.
Pediatr Clin North Am. 2014 Oct;61(5):1073-1083.
Abstract

Human rights obligations and policy supporting children and families. JRF Findings.
[No authors listed]
Child Care Health Dev. 2005 Sep;31(5):629.
Abstract

Ethical Challenges

Drug Equity/Access Disclosure Medical Decision-Making

Drug Equity/Access

     Journal Papers, Abstracts, and Commentaries

Medicines for children licensed by the European Agency for the Evaluation of Medicinal Products.
Muller FM, Trusen A, Weig M.
Eur J Pediatr 2002 Nov;161(11):563-74
Abstract

Disclosure

     Journal Papers, Abstracts, and Commentaries

Disclosure of serostatus by HIV infected youth: the experience of the REACH study. Reaching for Excellence in Adolescent Care and Health.
D’Angelo LJ, Abdalian SE, Sarr M, et al.
J Adolesc Health 2001 Sep;29(3 Suppl):72-9
Abstract

Disclosure of HIV diagnosis to children: When, where, why, and how.
Gerson AC, Joyner M, Fosarelli P, et al.
J Pediatr Health Care 2001 Jul-Aug;15(4):161-7
Abstract
Public disclosure of a child’s HIV infection: impact on children and families.
Wiener LS, Battles HB, Heilman N.
AIDS Patient Care STDS 2000 Sep;14(9):485-97
Abstract

Perceptions of children with HIV infection when not told for so long: Implications for diagnosis disclosure.
Instone SL.
J Pediatr Health Care 2000 Oct;14(5):235-243
Abstract

Informed Consent

     Journal Papers, Abstracts, and Commentaries

FULL-TEXT ARTICLE
Putting the ‘informed’ into ‘consent’: A matter of plain language.
Green J, Duncan R, Barnes G, Oberklaid F.
J Paediatr Child Health. 2003 Dec;39(9):700-703.
Paper

Factors influencing parental consent in pediatric clinical research.
Rothmier JD, Lasley MV, Shapiro GG.
Pediatrics 2003 May;111(5 Pt 1):1037-41
Abstract

Consent for Emergency Medical Services for Children and Adolescents.
Pediatrics 2003 Mar;111(3):703-706
Abstract

Medical Decision-Making

    Journal Papers, Abstracts, and Commentaries

Children of Jehovah’s Witnesses and adolescent Jehovah’s Witnesses:
what are their rights?
Woolley S.
Arch Dis Child. 2005 Jul;90(7):715-9.
Abstract

How paediatric residents involve children during medical decision-making?
Andre N, Gaudart J, Bernard JL, Chabrol B.
Arch Pediatr. 2005 Jul;12(7):1068-107
Abstract

Fairness and reasonableness of the child’s decision: a proposed legal standard for children’s
participation in medical decision making.
Walker NE, Doyon T.
Behav Sci Law 2001;19(5-6):611-36
Abstract

     Conference Reports, Abstracts, and Posters

Challenging parents’ right to decide against treatment for HIV-infected children in a resource-
rich country
V J Rogers, M A Clapson, V M Novelli
(15IAC)
Abstract

Human Subject Research

    Journal Papers, Abstracts, and Commentaries

What do research ethics committees say about applications to conduct research
involving children?
Angell E, Biggs H, Gahleitner F, Dixon-Woods M.
Arch Dis Child. 2010 Jun 23
Abstract

The legal ethics of pediatric research.
Coleman DL.
Duke Law J. 2007 Dec;57(3):517-624
Abstract

Ethical concerns regarding guidelines for the conduct of clinical research
on children
Edwards SDMcNamee MJ
J Med Ethics 2005;31
Abstract

Children in Medical Research: balancing protection and access: has the pendulum swung too far?
Ross LF.
Perspect Biol Med. 2004 Fall;47(4):519-36.
Abstract

Ethical principles and operational guidelines for good clinical practice in paediatric research.
Recommendations of the Ethics Working Group of the Confederation of European Specialists
in Paediatrics (CESP).
Gill D.
Eur J Pediatr. 2004 Jan 10
Abstract

Is it in a neonate’s best interest to enter a randomised controlled trial?
Allmark P, Mason S, Gill AB, Megone C.
J Med Ethics 2001 Apr;27(2):110-3
Abstract

Infant Circumcision

    Journal Papers, Abstracts, and Commentaries

A covenant with the status quo? Male circumcision and the new BMA guidance to doctors
Fox M, Thomson M
J Med Ethics2005;31:463-469;
Abstract

Human Rights Challenges

Principles Human Rights/Public Health         Violations

Violations

El Salvador

     Internet Documents

FULL-TEXT REPORT
El Salvador: Child Labor on Sugar Plantations
Human Rights Web June 10, 2004
Paper

India
     Internet Documents

FULL-TEXT DOCUMENT
India: AIDS Fueled by Abuses Against Children
Human Rights Watch July 29 2004
Paper

Kenya

    Journal Papers, Abstracts, and Commentaries

FULL-TEXT REPORT
HIV/AIDS and Children’s Rights in Kenya .
Csete J. Human Rights Watch
June 2001 Vol. 13, No. 4(A)
Paper

Healthcare Advocacy

    Journal Papers, Abstracts, and Commentaries

Pediatricians and the Rights of the Child. UN Convention provides blueprint for monitoring the well-being
of children worldwide.
Kasper J.
Pediatr Ann. 2004 Oct;33(10):712-5.
Abstract

FULL-TEXT ARTICLE
Advocating for children’s health: a US and UK perspective.
Waterston T, Tonniges T.
Arch Dis Child 2001 Sep;85(3):180-182
Paper

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Pediatric Internet Resource Center
Advocacy, Human Rights, and Ethical Challenges